In the United States, only about one-third of people have completed advance directives, which focus primarily on care before death. These documents could potentially be expanded to include preferences for autopsy privacy and genetic testing after death. Autopsies, which aim to determine the cause of death, can reveal incidental health findings not listed on death certificates. For instance, a man in his 40s who died in a motor vehicle accident was found to have a genetic kidney disease, while a 23-year-old had undiagnosed kidney cancer. The Health Insurance Portability and Accountability Act (HIPAA) protects health information for up to 50 years after death. However, the laws governing access to autopsy reports vary by state and even by county. Genetic testing during autopsies can uncover risks for diseases unrelated to the cause of death, raising ethical questions about sharing this information with relatives. A young woman discovered through a genetic test that she had a 28% chance of developing late-onset Alzheimer’s by age 75 and a 60% chance by age 85, illustrating the potential stress such information can cause.
Rod D. Martin
@RodDMartin
·
Feb 18 KEY POINT: SSA controls data for 70M+ Americans:
• Every SSN ever issued
• Work histories
• Banking info
• Medical records
And yet they’re paying 20 million DEAD people? Where’s that money going???
HINT: The people spending those billions are very much alive.
3/
Nikki da Costa
@nmdacosta
·
Mar 3 Under this bill they’d be exempt from any civil liability (clause 25), deaths would be exempt from investigation by a coroner (clause 29), there’ll be a code of practice but it’s only something you have to “have regard to” and failure to follow the code is “not itself” a problem,
Dr. Marian Laderoute, Ph.D. Immunology
@hervk102
·
Mar 19 Rather than enhance surveillance and investigations it appears the CDC had an altered agenda to decrease autopsies on deaths that occurred within 24 hours after the shot was administered.
Now why would that be???
Janet Eastham
@JanetEastham
·
Feb 14 NEW: Assisted dying panels can hold secret hearings.
Kim Leadbeater has revealed the 3-member panel that will replace the High Court judge in her Bill can hear evidence “in private” – with no requirement to notify families.
Care Not Killing
@CNKAlliance
·
Feb 17 ‘Families would not need to be told of an assisted death application and the panel could be held “in private.”’
CNK’s Gordon Macdonald called it “risible” to say “this massively watered down and opaque replacement” will be safer than a High Court judge.
Care Not Killing
@CNKAlliance
·
Mar 19 Leadbeater #AssistedSuicide Bill committee 19 March:
Clause 29 (Inquests, death certification etc)
Next debated:
―273 [Olney] regulations must specify that certain information is collected for each assisted death
―274 [Olney] linked to Amendment 273 and NC10 and provides that
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